By wendy, on March 10th, 2011%
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Chronic illnesses tend to wreak havoc with family finances. Between the cost of treatment, and the reduction in the ability to work; having an illness like fibromyalgia, bipolar disorder, myalgic encephalitis (chronic fatigue syndrome,) lupus, migraines, or any of the thousands of others out there can destroy a family’s financial security and severely limit the ability to provide traditional healthcare.
My illnesses have put me in the position of not being able to afford the several hundred dollars a month I was spending on medications with my insurance (and with the insurance we have now, the more than $1000 a month they would cost would take pretty much our entire income,) so I’ve had to find other options.
It’s been an interesting journey, and there have been times when I’ve seriously considered just killing myself and getting it over with (mostly during the forced withdrawal from the psychiatric meds I used to be on for my bipolar disorder.) I’ve reached a point now where I’ve found enough other options to manage fairly well, and I’m actually happier without the prescriptions than I was with them. (Even if I hit the lottery tomorrow, I wouldn’t go back to taking all the stuff I used to be on.)
It’s more work than just popping a handful of pills several times a day, but using herbs and aromatherapy to treat my symptoms is also very satisfying. I have much more control of what I’m putting into my body, I’m supporting the natural processes my body uses to heal itself rather than subverting them, and I’m not dealing with multiple side-effects that have to be treated with yet another expensive medication that comes with its own set of side-effects.
Natural treatments do take longer to “kick-in,” and I sometimes deal with slightly higher pain levels than I would if I could just take a heavy-duty pain-killer, but I don’t have to worry about becoming dependent on most of the herbal treatments I use, either. (Which also means that I don’t have to worry about withdrawal symptoms if I switch things around or run out of something.)
There are several herbs that I make certain I always have on hand, and as I promised in part 1, those are the ones I’m going to focus on in this post.
Disclaimer: I am not a doctor, and nothing I say in this post is intended as medical advice. If you find the idea of using herbs in your treatment plan intriguing, be sure to do the research and discuss any changes or additions with your healthcare provider to ensure your safety.
 Making Skullcap Capsules Skullcap: I use this one for pain reduction (it has actually helped more with my sprained shoulder than the Lortabs the doctor prescribed,) stress reduction, and help sleeping. I try to get it online, from Mountain Rose Herbs, because it’s half the price that I pay at the organic grocery down the street. ($15 a pound, as opposed to $30; so even after I pay for shipping, I save money.)
It works well for headaches (especially tension headaches,) and muscle pain; and in combination with other anti-inflammatory herbs like ginger and turmeric, it also helps with my arthritis/fibromyalgia pain. Continue reading Making My Own “Medicine” – Part 2 »
By wendy, on October 31st, 2010%
It’s time for the new Graceful Agony Blog Carnival post, and the subject this time is dreams. Not the kind of dreams you have while you’re sleeping, but the dreams you have for your life . . . It’s a wide open topic, and I can’t wait to see what the rest of the group does with it.
Personally, I don’t really know where to start. I have so many dreams that it’s hard to choose between them, and that lack of focus makes it almost impossible to accomplish ANY of them. Since that’s true, it makes sense to me to focus on the dream that caused me to start this blog, and that keeps bringing me back here, even when I’ve been having issues with writer’s block and fibro fog.
No matter how long it is between posts, I always wind up coming back; finishing up drafts and writing new stuff. Even during the worst of the fogs and fatigue, I find myself starting drafts so that when I’m more able to work on things the ideas will still be available.
I started this blog because I wanted to help others with chronic illnesses to find ways to cope that don’t necessarily involve doctors and prescriptions. Allopathic (Western) medicine is great for some things, but it is failing those of us with chronic illnesses because its total focus is on curing disease, and when the doctors can’t cure it they get frustrated.
My dream is to help people find things that help to make their lives better in spite of the diseases they live with every day, whether that is a new prescription medication that reduces their symptoms or a stress reduction technique that helps them cope with those symptoms. Continue reading A Dream is a Wish Your Heart Makes »
By wendy, on October 13th, 2010%
I found this article on Dr. Mercola’s site, and I thought that the information included could be very helpful for those of us who deal with the horrors of fibro every day. (I personally plan to try many of these suggestions, and have already discovered that aspartame DOES make my pain worse.) Republished with permission.
Chronic pain is a pervasive issue and fibromyalgia is a very common form. It is a chronic condition whose symptoms include muscle and tissue pain, fatigue, depression, and sleep disturbances.
Recent data suggests that central sensitization, in which neurons in your spinal cord become sensitized by inflammation or cell damage, may be involved in the way fibromyalgia sufferers process pain.
Certain chemicals in the foods you eat may trigger the release of neurotransmitters that heighten this sensitivity.
Although there have been only a handful of studies on diet and fibromyalgia, the following eating rules can’t hurt, and may help, when dealing with chronic pain. Continue reading Foods That Chronic Pain Sufferers Need to Avoid »
By wendy, on September 15th, 2010%
According to a recently released research study (Mortality in fibromyalgia: An 8,186 Patient Study Over 35 Years,) having fibromyalgia increases the chance that someone will commit suicide. I don’t understand exactly how much the risk increases, since the study provides an odds ratio rather than relative risk, but the simple fact that suicide is more likely is frightening enough. (The risk of accidental death was also higher in the fibromyalgia patients, which I’m guessing is at least partially related to “fibro fog” issues like forgetting whether you’ve taken your meds and accidentally taking an overdose.)
I totally understand why this is true, since my fibro has frequently triggered suicidal depressions for me, for various reasons. When I was first diagnosed, the total lack of understanding and support from my then-husband, combined with the lack of anyone in my life who DID understand and the terror of facing a life of pain and disability; threw me into a months long depression that only grew deeper as I dealt with the losses that came with the illness. I spent hours every day wishing I could die, and knowing that the fibromyalgia wouldn’t kill me.
There have been many more depressions since then, most related to the fibromyalgia in some way, even when it wasn’t the direct cause. The most recent one started 3 YEARS ago, Continue reading Fibromyalgia Increases Suicide Risk – Chronic Illness, Stress, and Depression Part II »
By wendy, on September 15th, 2010%
Depression has been a huge part of my life for so long that if it was suddenly taken away, I honestly wouldn’t know how to live. Even on the good days, it’s a constant, hovering just beneath the surface, waiting for the tiniest gap to escape through.
Peel an onion, and separate the layers. Take a good look at that delicate, transparent membrane between them; at how thin it is, how easily it’s torn. Something like that membrane is all that separates me from the depression that lives inside me like a monster, waiting its chance to tear through and eat every bit of happiness, every bit of hope, and every bit of energy I have.
Although I’ve been diagnosed as bipolar (accurately, I think;) my depressions tend to be situational depressions, not bipolar depressions. It may sound like semantics, or even denial, but there really is a major difference between the two. Continue reading Chronic Illness, Stress and Depression »
By wendy, on September 4th, 2010%
 
I got REALLY lucky a few weeks ago, and won a copy of FibroWHYalgia in a drawing on Living It, Loving It. I was THRILLED, because I knew it would be forever before I could afford to buy a copy. I drove everyone in the house nuts asking if it had come yet . . . until finally, it did (it seemed like forever, but was actually only about 5 days.)
I read it in about 2 days, and I keep going back and rereading different sections. I absolutely love this book . . .
Sue has done an excellent job of describing the difficulties so many have getting diagnosed, sharing her personal story in a way that resonates with the experience of those who spent years being told there was nothing wrong with them. Continue reading FibroWHYalgia – A Must Read for Anyone Who Wants to Improve Their Fibro »
By wendy, on August 15th, 2010%
Today is a silent storm of pain, everywhere in my body . . . there is no comfortable position, no relief, no rest, no ease. It was already shaping up to be a bad pain day because the weather was changing, and that always triggers the fibromyalgia. With fingers and toes that felt like there were nutcrackers clamped on every joint; sharp shooting pains in random areas; stiff neck; TMJ pain; the usual shoulder, elbow, and wrist pain caused by my job; the constant ache in my spine between my shoulderblades and in my lower back; and the grinding pain in my hips and knees my pain levels were about an 8 . . . and then there was the birthday party. Continue reading Silent Storm »
By wendy, on August 11th, 2010%
There’s a new blog carnival in town, hosted by Jolene at Graceful Agony, and the topic of the first edition is, “Let Me Introduce Myself.” This is my least favorite topic in the entire world, since I am NOT good at telling people who I am.
I think a big part of the problem is simply that there’s just so much to say, and the connections aren’t very logical. (I’m a Pisces, logic just isn’t part of my makeup. Intuition, emotion, passion: yes; history: I’ve got tons; logic: not so much.)
I’m a mass of contradictions, a mess of chronic illnesses, a pile of insecurities; and very much a product of my past. Continue reading Introductions Again? Yikes! »
By wendy, on July 29th, 2010%
According to a newly released research study (Mortality in fibromyalgia: An 8,186 Patient Study Over 35 Years ), having fibromyalgia increases the chance that someone will commit suicide. I don’t understand exactly how much the risk increases, since the study provides an odds ratio rather than relative risk, but the simple fact that suicide is more likely is frightening enough. (The risk of accidental death was also higher in the fibromyalgia patients, which I’m guessing is at least partially related to “fibro fog” issues like forgetting whether you’ve taken your meds and accidentally taking an overdose.)
I’d been wondering about this subject, since I’ve been dealing with some serious flare issues lately, and have caught myself thinking, “please just let me die and stop hurting,” quite a bit. Continue reading Fibromyalgia Increases Risk of Suicide »
By wendy, on July 14th, 2010%
 Some of the fireworks I missed while in the hospital. I just had the most awful holiday weekend EVER, thanks to my fibromyalgia, not having had insurance in two years, and the prejudice in the medical field against those living with chronic pain.
I got up last Friday(July 2) to start getting ready for work, and started passing huge amounts of fresh, liquid (and very red) blood. Naturally enough, that scared the hell out of me, and when it happened for the fourth time in an hour-and-a-half, I called in sick and headed to the emergency room at our local hospital. Since I wasn’t sure if it was related to one of my pre-existing conditions, and the insurance through my husband’s job doesn’t cover those for another couple of weeks (they have one of those clauses that says they won’t pay claims related to anything that was diagnosed before your coverage started for the first twelve months,) I went to the charity/teaching hospital, just in case it turned out not to be covered.
My first mistake was having the hubby drop me off, rather than calling an ambulance, assuming that even as a walk-in patient I would be seen within a reasonable length of time. (I guessed that it would take three to four hours to see a doctor, since I was bleeding, but it wasn’t VISIBLE. Boy was I ever wrong.) I arrived at the ER at approximately 2 PM Friday afternoon, and was FINALLY moved to a treatment room at 3 AM Saturday morning. That’s THIRTEEN hours of sitting in the waiting room, hoping I wouldn’t bleed to death before they got around to seeing me and watching people who came in after I did get treated and released because they didn’t need a “trauma room.” Continue reading Hospitals, Unfamiliar Doctors, and Fibromyalgia: What’s Your Experience? »
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---Hubert Humphrey
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