By wendy, on November 26th, 2011%
By Wendy Burnett
Day 25 – The Health Activist Writer’s Month Challenge Prompt (#HAWMC) for today is: “Never Have I Ever. You stick to your guns – now tell us about what. What is something you’ve never done but want to. What’s something you’ve never done and won’t budge on?”
Part one is easy . . . I’ve never been to Hawaii, and I WANT to go (permanently.) Actually, I guess any tropical island would do, I just happen to know that Hawaii has the internet connectivity I need.
 Randy Son of Robert via Flickr
I’ve always loved the ocean and beaches, and being on an island would totally surround me with both. Water in all its forms nourishes my soul, relieves my stress, and relaxes my body. I’ve also always been fascinated by the juxtaposition of beauty and danger in volcanoes, and can never resist watching programs about them. In Hawaii, I would have both, along with warmer temperatures (winter is always the worst time of the year for me, with the cold increasing my baseline pain levels.)
I grew up in south Florida, on the coast, and I miss the feel of the salt air, the roar of the surf, and the ocean breezes. Continue reading Never Have I Ever . . . Now How CAN I? »
By wendy, on November 24th, 2011%
 Ed Schipul via Flickr
By Wendy Burnett
Day 13 – The Health Activist Writer’s Month Challenge Prompts (#HAWMC) for today is “Open a book. Point to a page. Free write for 10-15 minutes on that word or passage. Post without editing if you can!” When I opened my book, the word I got was “acceptance,” so here goes.
The first step toward acceptance of a chronic illness is admitting that I’m powerless to make that illness go away, or to force my life back to the way it used to be. If I deny that I’m ill, or refuse to admit and adjust to my new limitations, I eliminate possibilities from my life.
This doesn’t mean that I’m powerless to make my life with illness better, or that I have to give up on being happy. Once I’ve admitted I can’t make it go away, and that my life is different; I can look for ways to reduce symptoms and find new ways to do the things I don’t want to give up.
Denial is a “stopper” though. Continue reading Accepting Chronic Illness – It’s NOT “Giving Up” »
By wendy, on November 24th, 2011%
 martha_chapa95 via Flickr
By Wendy Burnett
It’s Thanksgiving, what are you thankful for?
Living with chronic illnesses can make it very difficult to find your gratitude sometimes, and we all struggle with that on a regular basis. One of the things you learn eventually is that there is always something to be grateful for . . .
By wendy, on November 24th, 2011%
 By NJR ZA (Own work) [CC-BY-SA-3.0 (www.creativecommons.org/licenses/by-sa/3.0) via Wikimedia Commons
By Wendy Burnett
It’s that time of the year again. Thanksgiving, Christmas, cooking, shopping, decorating, parties and other holiday activities can lead to over-doing things. Throw in the expectations (and demands) of family and friends and you get higher stress levels, too. Add it all together, and you get the perfect recipe for a serious flare, which can totally ruin your the season for you.
It doesn’t have to happen though. There are dozens of ways to cope with the holidays, and I’ve collected five posts and articles full of helpful tips for simplifying your celebrations, pacing yourself, and coping with the physical and emotional stresses of the season. Continue reading Top 5 Posts: How to Prevent Holiday Flares »
By wendy, on November 23rd, 2011%
 by Andrea Kirkby
By Wendy Burnett
Day 23: The Health Activist Writer’s Month Challenge Prompt (#HAWMC) for today is: “Health Activist Choice. Write about whatever you want!” I like this. Not the subject that I’ve chosen, but the fact that I get to choose.
A friend wrote a post recently about someone who is being denied life-saving surgery because of the expense, and it made me think about the subject of “death panels” that we heard so much about during the original healthcare reform debates.
I think that what most people were missing in that whole controversy is that we’ve had the equivalent of “death panels” for years. Of course, they aren’t called that, if they were, people would be having a fit about them; but they’re there nonetheless. (And they have absolutely NOTHING to do with President Obama’s healthcare reform.)
Every insurance company (including Medicare and Medicaid) has one, usually called something innocuous, like a “treatment review board.” Hospitals have them too, to decide which patients are “appropriate candidates” for transplants or other procedures that can’t be performed for every patient that needs them. They aren’t CALLED death panels, but that’s what they are. What it all boils down to is a committee deciding who lives and who dies.
In an ideal world, everyone who needs a life-saving treatment would get it, but we don’t live in an ideal world. We live in a world with limited resources, and a profit-driven society that is controlled by people, institutions, and corporations that care only about making more and more money.
Because of this “profit is everything” mindset, cost is one of the main factors that play into the decisions of these review boards (and is frequently the only thing that actually counts, especially in the for-profit insurance industry.) People die every year because an insurance company wouldn’t pay for a treatment. Even though there is an appeals process in place, by the time a treatment is finally approved (IF it is approved,) the patient may have died or no longer be a good candidate because of the delay.
Medicare and Medicaid aren’t any better, either. Even though neither program is set up to make a profit, their resources are extremely limited. With the current lack of jobs that pay a living wage, even more people are being forced to fall back on government programs for healthcare, straining those resources even more. Throw in Congressional attempts to cut funding for both programs, and the situation becomes even more desperate, leaving even more people to die.
There is a solution, but it’s not likely to happen. The solution is to make people more important than profit margins and six figure bonuses for CEOs. It’s making people more important than cutting costs by cutting hours, reducing benefits and wages, and laying off employees or moving production to countries where you can pay 25 cents an hour. It’s making insurance a non-profit industry, where decisions are based on how likely a treatment is to work, not on how much it will cut into the company’s profits or the committee’s bonus package. It’s also eliminating tax loopholes that allow companies to make billions in profit while paying nothing in taxes, reducing military spending (we spend about 33% more than the next 9 highest spending countries in the world COMBINED) and making congress live with the same healthcare options as the rest of us.
This post was written as part of NHBPM – 30 health posts in 30 days: http://bit.ly/vU0g9J
Source for the military spending comment: http://blog.heritage.org/2010/04/05/how-does-u-s-defense-spending-compare-with-other-countries/
By wendy, on November 22nd, 2011%
 Image by limevelyn via Flickr
By Wendy Burnett
Day 11 - and the Health Activist Writer’s Month Challenge Prompt (#HAWMC) is: “If it’s not broke, don’t fix it. What is working well in your community, healthcare, blogs, social media, or your work in particular? What do you like about it?”
YAY! I get to do another gratitude post! I know, I know, that prompt doesn’t say anything about gratitude, but what works best in the chronic illness community more than deserves a little gratitude.
There are actually quite a few things that work well (not healthcare, but the rest of it works reasonably well.) What I like the best though, is the community. The vast majority of the people in the chronic illness community are absolutely awesome. Continue reading If It Ain’t Broke, Don’t Fix It »
By wendy, on November 19th, 2011%
 Pain Flares Image via Wikipedia
By Wendy Burnett
Day 10 – The Health Activist Writer’s Month Challenge Prompt (#HAWMC) for today: “The future of online activism. Our favorite social media sites are constantly undergoing renovations to become quicker to navigate, easier to interact with, all encompassing, mobile, and everywhere. Imagine the same thing about your community – how will they evolve, improve, and grow?”
The face of online activism changes constantly, with new causes and people appearing and disappearing like the flicker of lightning bugs on a warm summer evening. I think that health activism is even more fluid, because many of us became activists because of our own heath issues, and when those issues flare we sometimes have to take a break to deal with them.
I actually haven’t been able to write for 10 days or so because of a major flare of my own, caused by a horrible confluence of triggers all happening at the same time. Changeable weather, the two busiest weeks of the month at work, and running out of a couple of the things I use to keep my symptoms under control several days before my check came so I could replace them, all sent my pain levels through the roof. Throw in even higher stress levels than usual and painsomnia keeping me from sleeping more than 5 or 6 hours a night, and I’ve been pretty much screwed for the last couple of weeks. (And let’s not forget the cranky husband who isn’t getting what he needs. He doesn’t complain, but it does make him a lot more irritable.)
Okay, back to the point of this whole evolution, how fluid health activism can be. People appear, disappear, and reappear on a regular basis because of these personal issues; unlike activists that focus on other areas, who (usually) don’t have to deal with random flares of illnesses that can put them in bed for days.
Although it makes it more difficult to plan, I think having an illness is actually a big advantage for a health activist. (Don’t shoot me yet, this is actually going to make sense . . .) Continue reading Online Activism – Learning, Growing, & Evolving »
By wendy, on November 14th, 2011%

By Wendy Burnett
Day 9 – Oh dear, the Health Activist Writer’s Month Challenge Prompt (#HAWMC) is “My personal brand. As a Health Activist, you are a front-facing leader. What do you imagine you look like to your readers? What qualities do you possess? It’s ok to toot your own horn today – you have full permission to indulge. And don’t hold back.”
This is actually the hardest thing for me to do, as it is for most of us, I think. I can talk for hours about all the things I do “wrong” or that I need to change; but coming up with “tooting my own horn” material? Now THAT’S hard. (But then, I can also go on for hours about all the things I think I’m not very good at, that other people seem to think I do well, so there ya go.)
I guess, when you boil it all down to the essentials, what I really advocate more than anything else is taking control of (and responsibility for) your health. Whether that control involves being more proactive when dealing with your healthcare providers and making your own treatment decisions, refusing to participate in activities that make you sicker, Continue reading Personal Brand? Who, Me? »
By wendy, on November 14th, 2011%
 Image by Big Grey Mare via Flickr
By Wendy Burnett
“Shit Happens” – I know you’ve heard the expression somewhere. There are lots of other ways to say it, but it happens to all of us. Things go wrong. They just do. You can’t prevent bad things from happening sometimes, but you CAN stop them from destroying you when they do.
There have been lots of bad things happening around here in the last several months, and we’re all stressed out about them, but I’m not totally freaked like I would have been a few years ago.
Instead of freaking out, I’ve been looking for other options like ways to bring in more money and ways to save on things I use all the time. Instead of becoming paralyzed, I’ve used the “shit” as motivation, and as fertilizer for the flowering of new ideas. Continue reading Shit Happens – Use it to Fertilize the Flowers »
By wendy, on November 9th, 2011%
By Wendy Burnett
Day 8 – The Health Activist Writer’s Month Challenge (#HAWMC) prompt for today is actually “3 Truths and 1 lie. Tell us 3 things that are true about you, your condition, your Health Activism, or your life. Now tell us 1 lie. Do you think we will be able to tell the difference?”
I’m not really crazy about this one, and I missed the Saturday post (that I did like) so I’m going to switch them out. (Besides, I’m a crappy liar, and don’t have much chance of coming up with something you’ll believe.)
So the prompt I’m working from is: “5 things that changed my life. For better? For worse? List 5 things that changed your life as a patient, caregiver, or Health Activist and how.”
This is a bit of a tough one for me, since most of the things that have changed my life have not been pleasant to live through, and are not fun to think about. One of the things I’ve learned in my 50+ years is that enjoyable experiences tend not to have lasting effects on my life (and they never last long enough, either.)
The experiences themselves may have been unpleasant, but mostly they’ve had good results (eventually.) I look at the nasty bits of my life as learning experiences because every one of them has taught me something I needed to know, pushed me out of my comfort zone, or both.
I guess the first and most life changing experience that I can remember is my mother “kidnapping” me from my dad’s family when I was 5 years old. Continue reading Life Changers are Always Painful »

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"The moral test of a society is how that society treats those who are in the dawn of life . . . the children; those who are in the twilight of life . . . the elderly; and those who are in the shadows of life . . . the sick, the needy, and the handicapped."
---Hubert Humphrey
Welcome to the new home of Sick and Tired of Being Sick and Tired. I hope you'll enjoy the changes, and the new resources I'll be adding as I have time to work on the site. Things will look a bit odd while I learn where and how to modify the appearance, so please bear with me.

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