By wendy, on March 10th, 2011%
(Disclosure notice: Links to product pages in this post are affiliate links, and if you make a purchase using one, I will receive a payment. If you enjoy this blog and intend to make a purchase, I would greatly appreciate your use of my links to do so. It will not affect the price you pay, and will help me keep this blog online.)
Chronic illnesses tend to wreak havoc with family finances. Between the cost of treatment, and the reduction in the ability to work; having an illness like fibromyalgia, bipolar disorder, myalgic encephalitis (chronic fatigue syndrome,) lupus, migraines, or any of the thousands of others out there can destroy a family’s financial security and severely limit the ability to provide traditional healthcare.
My illnesses have put me in the position of not being able to afford the several hundred dollars a month I was spending on medications with my insurance (and with the insurance we have now, the more than $1000 a month they would cost would take pretty much our entire income,) so I’ve had to find other options.
It’s been an interesting journey, and there have been times when I’ve seriously considered just killing myself and getting it over with (mostly during the forced withdrawal from the psychiatric meds I used to be on for my bipolar disorder.) I’ve reached a point now where I’ve found enough other options to manage fairly well, and I’m actually happier without the prescriptions than I was with them. (Even if I hit the lottery tomorrow, I wouldn’t go back to taking all the stuff I used to be on.)
It’s more work than just popping a handful of pills several times a day, but using herbs and aromatherapy to treat my symptoms is also very satisfying. I have much more control of what I’m putting into my body, I’m supporting the natural processes my body uses to heal itself rather than subverting them, and I’m not dealing with multiple side-effects that have to be treated with yet another expensive medication that comes with its own set of side-effects.
Natural treatments do take longer to “kick-in,” and I sometimes deal with slightly higher pain levels than I would if I could just take a heavy-duty pain-killer, but I don’t have to worry about becoming dependent on most of the herbal treatments I use, either. (Which also means that I don’t have to worry about withdrawal symptoms if I switch things around or run out of something.)
There are several herbs that I make certain I always have on hand, and as I promised in part 1, those are the ones I’m going to focus on in this post.
Disclaimer: I am not a doctor, and nothing I say in this post is intended as medical advice. If you find the idea of using herbs in your treatment plan intriguing, be sure to do the research and discuss any changes or additions with your healthcare provider to ensure your safety.
 Making Skullcap Capsules Skullcap: I use this one for pain reduction (it has actually helped more with my sprained shoulder than the Lortabs the doctor prescribed,) stress reduction, and help sleeping. I try to get it online, from Mountain Rose Herbs, because it’s half the price that I pay at the organic grocery down the street. ($15 a pound, as opposed to $30; so even after I pay for shipping, I save money.)
It works well for headaches (especially tension headaches,) and muscle pain; and in combination with other anti-inflammatory herbs like ginger and turmeric, it also helps with my arthritis/fibromyalgia pain. Continue reading Making My Own “Medicine” – Part 2 »
By wendy, on November 21st, 2010%
Dr. Grinstead was kind enough to allow me to post this short article as a guest post, and the copyright belongs to him exclusively. The contents of this post may only be used with his permission, and with appropriate credit and links.
By: Dr. Stephen F. Grinstead, LMFT, ACRPS, CADC-II
To find a balance point you must be able to identify what the extremes are that you need to balance. In the table below you will see each of the target five balance points you need to strive to obtain in your life.
1. Positive Self-Talk
2. Appropriate Emotional Expression
3. Healthy Support Network
4. Spirituality/Humility
5. Effective Pain Management
Most people pay little attention to all the random thoughts that go through their head each day. Unfortunately, this is not the best way to go through life if you want to thrive. I want to have you consider a quote attributed to the Dalai Lama that I’ve posted below.
“Watch your thoughts, for they become words. Choose your words, for they become actions. Understand your actions, for they become habits. Study your habits, for they will become your character. Develop your character, for it becomes your destiny.”
Balance Point One: Positive Self-Talk
The first balance point is positive self-talk. On one end of this continuum is repressed self-talk. When you are at this end of the spectrum you are not listening to your thoughts that eventually create your destiny. When your thoughts can lead you to making poor choices this might not be such a bad thing. However, for the most part it is important to monitor your thinking patterns so you can end up not creating negative consequences for yourself.
Balance Point Two: Appropriate Emotional Expression
A trap I see some people fall into is labeling feelings or emotions as either good or bad. I do not believe in “good” or “bad” emotions. I do believe that emotions can however be comfortable or uncomfortable. Some emotions such as happiness or joy are sought after, while other emotions like fear or loneliness are to be avoided at all costs. This type of paradigm can lead to going to one end or the other of this spectrum.
Balance Point Three: Healthy Support Network
It is crucial to build a chronic pain support network for yourself. This balance point of a healthy support network also has two dangerous extremes—isolation and enabling. Let’s start with the isolation extreme. This is usually fueled with the belief that I have to do it myself. Sometimes this is coming from a power position because of a mistaken belief like “I can’t trust/depend on others.” While for other people the mistaken belief might be “I have to do it myself because I’m no good; or nobody is there for me.” Either way you lose the chance to have someone in your corner when it really counts.
Balance Point Four: Spirituality/Humility
The next balance point of spirituality/humility also has problematic extremes. Here too people can vacillate between the extremes and never stay in the middle. On one end of the spectrum people are at risk for moving into pride and/or arrogance while at the opposite end is shame and guilt. Spirituality is a complex and multidimensional part of the human experience. It involves beliefs, perceptions, thinking, feeling, experiential and behavior aspects.
Balance Point Five: Effective Pain Management
This last balance point of effective pain management is crucial for effective chronic pain management and freedom from suffering. The two extremes here are ignoring pain or suffering. I believe that there are times when ignoring pain—or avoidance by appropriate distraction—can be a good thing. I don’t believe it is ever a good thing to be in suffering from your pain.
Striving for balance in chronic pain management recovery is crucial for freedom from suffering and obtaining a great quality of life. This will help you move beyond surviving with chronic pain to thriving and enjoying life to the fullest.
Dr. Grinstead’s blog: Addiction Free Pain Management Blog
Dr. Grinstead’s company website: CENAPS
Dr. Grinstead’s personal website: Addiction Free Pain Management
By wendy, on October 31st, 2010%
It’s time for the new Graceful Agony Blog Carnival post, and the subject this time is dreams. Not the kind of dreams you have while you’re sleeping, but the dreams you have for your life . . . It’s a wide open topic, and I can’t wait to see what the rest of the group does with it.
Personally, I don’t really know where to start. I have so many dreams that it’s hard to choose between them, and that lack of focus makes it almost impossible to accomplish ANY of them. Since that’s true, it makes sense to me to focus on the dream that caused me to start this blog, and that keeps bringing me back here, even when I’ve been having issues with writer’s block and fibro fog.
No matter how long it is between posts, I always wind up coming back; finishing up drafts and writing new stuff. Even during the worst of the fogs and fatigue, I find myself starting drafts so that when I’m more able to work on things the ideas will still be available.
I started this blog because I wanted to help others with chronic illnesses to find ways to cope that don’t necessarily involve doctors and prescriptions. Allopathic (Western) medicine is great for some things, but it is failing those of us with chronic illnesses because its total focus is on curing disease, and when the doctors can’t cure it they get frustrated.
My dream is to help people find things that help to make their lives better in spite of the diseases they live with every day, whether that is a new prescription medication that reduces their symptoms or a stress reduction technique that helps them cope with those symptoms. Continue reading A Dream is a Wish Your Heart Makes »
By wendy, on October 13th, 2010%
I found this article on Dr. Mercola’s site, and I thought that the information included could be very helpful for those of us who deal with the horrors of fibro every day. (I personally plan to try many of these suggestions, and have already discovered that aspartame DOES make my pain worse.) Republished with permission.
Chronic pain is a pervasive issue and fibromyalgia is a very common form. It is a chronic condition whose symptoms include muscle and tissue pain, fatigue, depression, and sleep disturbances.
Recent data suggests that central sensitization, in which neurons in your spinal cord become sensitized by inflammation or cell damage, may be involved in the way fibromyalgia sufferers process pain.
Certain chemicals in the foods you eat may trigger the release of neurotransmitters that heighten this sensitivity.
Although there have been only a handful of studies on diet and fibromyalgia, the following eating rules can’t hurt, and may help, when dealing with chronic pain. Continue reading Foods That Chronic Pain Sufferers Need to Avoid »
By wendy, on September 19th, 2010%
Does having bipolar disorder automatically mean I’m not in pain, or that my pain should not be treated? Does the fact that someone has been addicted to something in the past mean that they should have to suffer excruciating pain for the rest of their lives to prevent readdiction to a new medication? If someone is dying of cancer, what difference does it make if they become addicted to the pain medication that makes their death less painful, that allows them to have a little relief?
Our society has become so terrified by the picture of the crazed, murderous addict that the government has painted for us that we will allow them to do almost anything to protect us, even though in the vast majority of cases that picture is no more than government propaganda.
The government has lost the war against drugs, they have no hope of ever being able to stop the illegal flow of drugs into this country, so they have changed their propaganda, and their targets. The war on drugs has become a war against chronic pain patients and the few remaining doctors who are willing to treat them.
Doctors are being persecuted (AND prosecuted) for trying to provide adequate treatment for their patients, and for every doctor who is prosecuted, many more begin refusing to prescribe the pain medications that make our lives worth living because of the fear that they will be next. Continue reading Killing Me Softly – The War on Drugs Becomes a War Against Adequate Treatment of Chronic Pain Conditions »
By wendy, on September 4th, 2010%
 
I got REALLY lucky a few weeks ago, and won a copy of FibroWHYalgia in a drawing on Living It, Loving It. I was THRILLED, because I knew it would be forever before I could afford to buy a copy. I drove everyone in the house nuts asking if it had come yet . . . until finally, it did (it seemed like forever, but was actually only about 5 days.)
I read it in about 2 days, and I keep going back and rereading different sections. I absolutely love this book . . .
Sue has done an excellent job of describing the difficulties so many have getting diagnosed, sharing her personal story in a way that resonates with the experience of those who spent years being told there was nothing wrong with them. Continue reading FibroWHYalgia – A Must Read for Anyone Who Wants to Improve Their Fibro »
By wendy, on August 15th, 2010%
There’s a new blog carnival in town, and the first edition is LIVE. Hosted by Jolene, over at Graceful Agony, this first round is introductions from the participants, and includes some amazingly candid posts.
I haven’t known any of these ladies long, but they inspire me and give me strength on the bad days; and allow me the honor of trying to do the same for them. They are the strongest people I know, and I’m so thankful to have found them (thank you Jo . . .)
Jolene amazes me with her strength and determination. She has been suffering agonizing pain, and is now dealing with a beloved family member who is in the hospital dying; but she still found the time and energy to read all of the submissions for the carnival, AND get it posted. I don’t know how she does it, but she is a model for all of us that live with chronic illness and proof that you CAN have a productive life no matter how bad it gets.
By wendy, on August 15th, 2010%
Today is a silent storm of pain, everywhere in my body . . . there is no comfortable position, no relief, no rest, no ease. It was already shaping up to be a bad pain day because the weather was changing, and that always triggers the fibromyalgia. With fingers and toes that felt like there were nutcrackers clamped on every joint; sharp shooting pains in random areas; stiff neck; TMJ pain; the usual shoulder, elbow, and wrist pain caused by my job; the constant ache in my spine between my shoulderblades and in my lower back; and the grinding pain in my hips and knees my pain levels were about an 8 . . . and then there was the birthday party. Continue reading Silent Storm »
By wendy, on August 6th, 2010%
The next ChronicBabe carnival topic is “how do you deal with the medical establishment.” Since I lost my insurance two years ago, I hadn’t dealt with them at all until last month when I had to go to the emergency room, and ended up in the hospital for 5 days with no pain meds. I had my first visit with a rheumatologist since Oct. 2007 on Monday, and that experience wasn’t a whole lot better. Continue reading The Medical “Establishment” – Thanks; but No, I Don’t Think I Will »
By wendy, on July 29th, 2010%
According to a newly released research study (Mortality in fibromyalgia: An 8,186 Patient Study Over 35 Years ), having fibromyalgia increases the chance that someone will commit suicide. I don’t understand exactly how much the risk increases, since the study provides an odds ratio rather than relative risk, but the simple fact that suicide is more likely is frightening enough. (The risk of accidental death was also higher in the fibromyalgia patients, which I’m guessing is at least partially related to “fibro fog” issues like forgetting whether you’ve taken your meds and accidentally taking an overdose.)
I’d been wondering about this subject, since I’ve been dealing with some serious flare issues lately, and have caught myself thinking, “please just let me die and stop hurting,” quite a bit. Continue reading Fibromyalgia Increases Risk of Suicide »
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